Protecting Elders and the Impaired From Sexual Abuse

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How do we protect elders and the impaired, or more personal, our family members, from sexual abuse? We interview caregivers and review references for someone to provide assistance while we are working or we trust an assisted living facility to care for our loved ones. Concurrently, we worry about vulnerability and find the progression to our own future frail, vulnerable state to be terrifying and depressing. 

Elder sexual abuse is under reported and under diagnosed. It is difficult to detect in many cases because the victim cannot articulate or clearly remember what happened. One strategy, however,  in the detection of elder sexual abuse is to identify at-risk elders and concentrate efforts with this population. 

Social isolation of the elder may account for a barrier in detecting sexual abuse. But even the most isolated elder will visit a health care provider at some point which on average is about five times a year. Nevertheless, health care providers percentages of reported abuse cases is small-about 20% or less. 

For a frail, dependent elder, the primary care provider may be the only opportunity for abuse detection and yet, many primary care givers believe the symptoms are related to aging and disease rather than abuse. Researchers analyzed a set of State of Michigan records of reported cases of elder abuse for the years 1989-1993 and noted that physicians reported an average of only 2% of all cases reported. It was suggested that increasing physicians and nurses awareness of the problem of elder sexual abuse could increase the number of cases screened for potential abuse and as such increase the number of elder sexual abuse reports to responsible agencies.

All suspected cases of elder sexual abuse should to be reported for two reasons. The first reason is to provide for the safety and protection of the elder and the second reason is to prevent further victimization by the perpetrator. Cases need a rapid and immediate report to those in charge of their care, to the physician (if an institution case) and a complete physical examination by a qualified sexual assault forensic examiner. The absence of such reporting and documentation in a nursing home places the facility at risk for negligent protocol. 

Within the care providing role, observations of the vulnerable elder are very important in verifying on going abuse. Although specific evidence may be difficult, home care providers can increase their visits and observations as a strategy to increase the body of evidence.There is a reporting hesitance  in family cases of elder abuse. Elder abuse laws are designed and intended to protect vulnerable citizens and to punish violators. But people are concerned about and investigations and repercussion if they are wrong. 

Barriers identified to detecting elder abuse include: families/patients resistance to intervention once elder abuse is identified, families/patients denial of abuse, fear of reprisal by the abuser towards the elder, lack of professional protocols for responding to elder abuse, lack of clear guidelines about confidentiality in elder abuse situations, difficulty in determining what constitutes elder abuse, and the lack of knowledge about the prevalence of elder abuse. 

Recommendations include an elder abuse package for education, detection and management  of elder abuse with a website as well as professional guidelines for detection and management.

How do we identify when sexual abuse may have occurred versus the normal personality changes when the person has dementia or Alzheimers? It’s the focus of the next blog.

Sources:  “Elderly Victims of Sexual Abuse and Their Offenders”, Ann W. Burgess, U.S. Department of Justice, December 2006.  “Elder Abuse,”  National Institutes of Health.

 

 

 

Aging with Alzheimer’s Disease

Oldman052013One of the fears of aging is how do I maintain dignity and control over my dying if I have Alzheimer’s Disease? The amyloid plaque deposits in the brain start around 17 years before mild cognitive impairment and then rises dramatically over ten years before the onset of impairment. Nearly half of people living to 85 are at risk compared to only 10% at 65. Recent estimates indicate that the 5 million people with Alzheimers today will triple to 13.8 million Americans by 2050. What about the long term costs for care? Can I afford better care with my savings-for how long?

I recently read the award winning New York Times best seller Still Alice., by Lisa Genova. It describes the life of a fifty year old Harvard Professor, Alice, with an equally accomplished spouse and three grown children who is diagnosed with Alzheimer’s Disease. It artfully depicts the stress on the family and the limiting of options for them as they become caregivers as well as their own fears for their future and that of their children. The disease changes the professor’s life and her relationship with her family but a new way of living and loving evolves as does the care needs.

A third of current caregivers have been providing care for more than five years and 10% for more than ten years. Recent research indicates that caregivers using a problem focused care strategy produced better outcomes for themselves and their loved one than emotion based which includes avoidance or guilt. What about the human costs for caring for the loved one with dementia?
There are no exact answers to the questions or regarding financial impact. But as we age, we need to face our eventual body and mind declining and put together the legal documents of what we want to occur as our health wanes. We need to put the end of life legal documents in place while our brain is functional, appoint a legal surrogate as the decision maker, and make informing our family members of our wishes a top priority.

For some people, the thought of slowly dying from Alzheimer’s Disease is not desirable and they choose to voluntarily stop eating and drinking while still mentally competent rather than a slow progression resulting in the same end. The process can take one to two weeks. It is controversial and sometimes unsupported by family members and medical providers. People interested in learning more about this option may contact Compassion & Choices, http://www.compassionandchoices.org, the Alzheimer’s Association, http://www.alz.org, or the National Association of Elder Law Attorneys, http://goo.gl/QbZ7m. In any case, it is important that you define your end-of-life wishes. If you are diagnosed with Alzheimer’s disease, you must execute the documents while still mentally competent.

Sources: Älzheimer’s and end-of-life decision making,” by Robb Miller, Aging Today, May-June 2013. “Alzheimer’s, the age boom and the search for a cure”, by Gary Small, Aging Today, May-June 2013.

Value of the Family Caregiver

Family care giving includes all unpaid services provided by family and friends. Because of gaps in the healthcare system and family preferences, family and friends are providing most of the care for those with chronic conditions. Meanwhile, the afflicted not only are in physical discomfort but also have major concerns that they will become an economic and emotional burden. Depending on the assets of the elder or impaired and the state of residence, the caregiver may receive monetary assistance from Medicaid.

To better understand the value of care giving, in 1997 home health care was $32 billion, nursing home care was $83 billion, and the value and savings for the health care system as a result of family care giving was $196 billion.[1] 

Forth-three percent of those providing care are 50 years or older and sixty-one percent of family care givers are women.  Forty per cent of family caregivers are employed full time, have families, and spend 20 hours a week being a caregiver frequently for parents.[2] For caregivers who provide 40 hours or more per week, 29% tend to be in fair or poor health, with 28% aged 65 or older.[3]  One research study found that elderly people who felt stressed while taking care of their disabled spouses were 63 percent more likely to die within 4 years than caregivers who were not feeling stressed.  Caregivers frequently do not get enough sleep, get enough physical activity, or eat enough healthy meals due to depression and/or time constraints.  While caring for a family member can be a wonderful, rewarding experience, you have to find resources to provide some balance and personal time to retain your mental and physical health.

Ask your doctor or call the Area Agency on Aging for information on classes and support resources for the caregiver. It can mean the difference in maintaining you health or life itself.


[1] Arno, PS, Levine, C and Memmott, MM, “The Economic Value of Informal Caregiving,” Health Affairs, 18:2, March/April 1999.

[2] Caregiving in the U.S., National Alliance for Caregiving and AARP, 2004.

[3] Alecxih, LMB, Zeruld, S and Olearczyk, B. ‘Characteristics of Caregivers Based on Survey of Income and Program participation.” National Family Caregiver Support Program. Administration on Aging, Lewin Group, 2001.

Sex in the Second Half of Life

The Harvard “Healthbeat” July 17 issue, compiled a number of studies of sexuality and aging which is overall quite positive. When you read the Indiana University research regarding casual and transactional sex,however, it is disturbing for about a third of the study subjects. There is a recognized problem with sexually transmitted diseases in the elder community with an increase of sexually transmitted diseases. Do caregivers and elder living communities need to have “safe sex” discussions or do we ignore it? Read on..

Sexuality is not just for the young. Results from a University of Chicago survey published in 2007 suggested that over half of Americans remain sexually active well into their 70s. That said, sexual activity does subside with age. Biological factors tug in that direction, as do social arrangements: older people, especially women, often end up single when a spouse or partner dies. But researchers at Indiana University report that 20% to 30% of long-lived Americans are sexually active into their 80s.

Now suitable for study

It wasn’t long ago that older people weren’t included in studies of sexual behavior because they were seen as largely irrelevant to the topic: 59 was the upper age limit of a landmark study of American sexuality conducted in the early 1990s. However, the University of Chicago survey focused exclusively on older adults, including just over 3,000 Americans ages 57 to 85. The results lent some legitimacy to the subject of sexuality of older people. Here are some of the main points:

Sexual activity tapers off with age. Both surveys show a decline in sexual activity with age, although the drop-off isn’t as steep as one might expect, and a significant minority (especially men) defies the trend. In the Indiana study, 35% of the men ages 80 and older reported that they had intercourse a few times or more in the past year. In the University of Chicago study, 38.5% of the men ages 75 to 85 reported having sexual activity with a partner in the previous year.

Older women are less sexually active than older men. Both studies show that older women — even the “young old,” in their 60s — are less sexually active than men of the same age. The gender gap widens as people get older.

Partnered sex gets high marks. In the Indiana study, over three-quarters (78%) of the men ages 50 and over rated their most recent sexual experience with a partner as either extremely or “quite a bit” pleasurable. About two-thirds (68.2%) of the women in that age group rated their most recent experience with a partner that highly.

Yet, a sizable minority of the men (43%) and women (36%) in the Indiana study reported that their most recent partnered sexual activity was with someone other than a spouse or long-time partner. This category included casual or new acquaintances, friends, and “transactional” partners — people who engaged in sex in exchange for something, often but not always money.

Masturbation is common. Most men (63%) and almost half of women (47%) in the 50 and over age group reported masturbating in the past year, according to the Indiana survey. As with other sexual activities, the percentage declined with age.

Good health matters. The University of Chicago researchers found a strong association between good health and sexual activity, particularly among men. Diabetes seems to have a greater negative effect than either arthritis or high blood pressure on both genders, but especially on women. In the Indiana survey, a woman’s evaluation of her last sexual experience did not vary with her self-reported health status.

Sexual problems are common. Half of those who participated in the University of Chicago study reported having at least one bothersome sexual problem. Among men, the problems included difficulty achieving and maintaining an erection (37%), lack of interest in sex (28%), anxiety about performance (27%), and inability to climax (20%). Among women, the common problems were lack of interest in sex (43%), difficulty with lubrication (39%), inability to climax (34%), lack of pleasure from sex (23%), and pain during sex (17%). In the Indiana survey, 30% of the women ages 50 and over said they experienced some level of pain during their most recent sexual experience with a partner.

Many men take something to improve sexual function. In the Indiana survey, 17% of men ages 50 and older took an erectile dysfunction drug in connection with their most recent sexual experience with a partner. In the University of Chicago study, 14% of the men and 1% of the women reported taking medications or supplements to improve sexual function during the past year.

The importance of having a Personal Health Record (PHR) –

A PHR is a collection of your important health information all in one form. This information comes from a variety of sources such as your medical records, family health history and your doctor’s office. It is important to keep a complete medical record of your personal health in a single location because a key cause of death is drug interactions.

At FreedomRefined.com we have researched many PHR forms that are on the web and from different medical organizations. We have created a very concise, easy to complete form for you and your family members.

With a completed PHR for you and your family that lives with you, any doctor or medical provider will have vital, current and previous health information on you when needed. Keep a copy in your home in an easily accessible location known by all family members and caregivers. Ladies, keep one in your handbag or copied on your iPad for you and anyone in your household. It is also a good idea to provide adult family members a copy.

An important time to have a PHR is when you are traveling. Place it in your briefcase, golf bag and suitcase. You may be many miles from home, away from family and your doctor. Having the PHR will give the medical staff an insight on you and your health even if you are unable to relay the information. It can save your life.

A friend of FreedomRefined.com advised me that she keeps a copy of her family’s PHR on the refrigerator. Everyone knows the location and can tell the 911 or EMT team where the information is located.

One last very important thing to remember – this is not a onetime process! You must remember to update your PHR as needed. If you have given a copy to a family member, remember to provide them with an updated copy. You will be glad you did because it can save your life.

For your convenience we have provided a Personal Health Record (PDR) on our blog and on the resource page at http://www.FreedomRefined.com.

– Jenifer

Brain Health-Veterans & Brain Disease

As the mother of two sons who both served in Iraq, I am posting a devastating article of what may be the future. http://www.nytimes.com/2012/04/26/opinion/kristof-veterans-and-brain-disease.html

Are you scheduled for a Transesophageal Echocardiogram (TEE)?

My Side – 

Several weeks ago my mom had to undergo a TEE test. During an annual checkup, her primary doctor noticed a “spot” on her heart that caused him concern. He recommended a Cardiologist to get to the bottom of what this might be on her sonogram. Mom is having increasing issues with her breathing so they are looking for possible causes.

My mom is a woman of few words so sharing her feelings about the test was difficult. However, I know in the two weeks prior to the test, it was always on her mind. Several times during the week before the test, she had been unable to eat, saying she could not swallow. Some research on my part gave me the details that she must “swallow” during this procedure.  I knew again it was nerves that had driven these symptoms.

Since the test is now complete, I see mom getting back to her normal self. We have discussed the TEE test and what was involved. She shared with me that “not knowing” what was going to happen really created more concern than the outcome of the test itself. Learning that from her, prompted me to ask her to share what she experienced in the hope that she might be able to relieve someone else’s concerns who might have this test scheduled. Below please find mom’s TEE test experience.

Her side – 

I recently underwent this procedure when the results of the normal echocardiogram were inconclusive. The doctor needed to take a closer look to determine if my symptoms were related to some heart condition. I was a bit apprehensive because I had been told that I would be asked to swallow the endoscope that the doctor would insert in my mouth and then on into my esophagus. Since I sometimes have trouble swallowing under normal conditions I was afraid they wouldn’t be able to get the procedure done.

I was treated as an outpatient and the entire procedure took about 4 hours from the time I walked in to register until the time one of my nurses walked me out to be picked up by a family member. After checking in I was escorted back to the cubicle where the TEE would take place, asked to remove my shirt and put on a hospital gown. Once I took care of that I met a team of nurses who were there to monitor me and assist the doctor who was performing the procedure.  Electrodes were attached to my chest, a blood pressure cuff was attached to my arm and an IV was inserted into my arm for the relaxation drugs the doctor would use to make sure I was as comfortable as possible. Then a device was attached to my finger to monitor oxygen levels and I was hooked up to oxygen administered through my nose.  While I was being prepped for the procedure one of the nurses explained step-by-step what would happen. The doctor then arrived, double checked a few facts he had on me and, once satisfied, he started the drugs in the IV and had me open my mouth to gargle with a deadening agent and then sprayed another agent into my mouth.  That is the last thing I remember until I awoke a couple hours later! The nurses made sure I was not in any pain and able to speak and drink some juice before they allowed me to get dressed and call for my ride home. One of them explained that the long, thin, flexible tube about ½ inches in diameter was inserted all the way into my esophagus. There was a transducer inside this tube which allowed the doctor to get a good look at the heart’s valves and chambers without any interference by the ribs or lungs. I actually slept through this entire part of the procedure. One of the nurses gave me an overview of the results since I did not remember any of the conversation the doctor had with me when he finished.

I was then escorted to the car and given a list of things I should and should not do and was on my way. Hopefully if you have to undergo this procedure, you’ll have as wonderful a team of nurses and doctor as I did.

– Jenifer with her mom Billie

Why Tennis Balls on your Medical Walker is not a good idea

I know you see tennis balls, cut open and stuck on the bottom of many two wheeled walkers. Visit any senior center and every other two-wheeled walker has the tennis balls on the back legs. They can even look like fun as they are brightly colored.

What are the tennis balls for? The most common reason is that it makes for a smoother walk and lessens the clanking and scraping as the back legs scrape along on the floor after the rubber caps on the back legs come off. And, we know that those rubber caps do wear out quickly from a well used walker.

Reason for tennis balls per ads is to keep walkers from slipping, protect floor while ensuring that the walker won’t slip on smooth surfaces or snag on carpeting. You can buy preslit tennis balls from a company called Walker.

There are really good reasons not to put tennis balls on your walker:

  • Do you want neon colors showing off their walkers?
  • Difficult and dangerous to slit the tennis ball open with a knife and wiggle it onto the legs
  • The balls don’t last long – what starts out all soft and fuzzy gets hard and back to scraping quickly
  • Unsafe as they make the walker unstable and add wear and tear to the walker itself
  • Tennis balls are expensive! $12.99 for a set of 4. If a family member provides you with their used ones, the time on the floor is shortened even more than with a new one
  • Tennis balls are unsanitary as they pick up and track germs. And, they just get dirty!

If you agree with me that tennis balls are not a good accessory and are looking for an alternative, at FreedomRefined.com we carry a style of walker glides called Walker Ski Glides by Carex ®.

Very affordable, long lasting and fits most walkers. These glide smoothly over most surfaces, including grass and cement. It will fit any 1 1/8” walker tubing. Please check it out at our site. Click here to view. To install you need to remove either the tennis balls or rubber tips from the rear legs of your walker. Now insert the glides into each of the legs with the raised lip on the glide facing to the front of the walker. Make sure each glide fits securely into place and use a screwdriver to tighten the screw on the bottom of each glide by turning it clockwise.

Now get out there and hit the walkway with your new walker ski glides and remember, BE SAFE.

– Jenifer

Freedom Refined: Medical equipment made easy

Dating and Love After 55

Dating Sites

For those of you who have been singing the Johnny Lee tune “Looking for love in all the wrong places”, I decided to informally poll some over 55+ women and men about their experiences with dating sites and the most memorable things posted, emailed, or experienced. Most of those polled have found their special person on line and are quite happy. I share with you the outliers .

  • “I don’t have much in the way of criteria-heavy smokers, non-drinkers, vegans, hoarders, addicts, living with parents, owners of more than a dozen cats-those are all out”
  • “I am thankful for my health, which other than high blood pressure, cholesterol and Type 2 diabetes, is really good.”
  • “I know you are the one for me and were sent by my wife in heaven who I have asked to watch over and protect you.”(second email)
  • “We had met for coffee and decided that she would come over and we would watch the football game. She brought popcorn and was heating it in the kitchen, I was mesmerized with the game. All of a sudden, I was tackled by a naked woman which I did not expect. Not thinking, I avoided the tackle, popcorn snowed over the couch, and she sprained her ankle when she landed. Our first and last date ended in Urgent Care.”
  • “What is it with women and their pets? When their profile is “littered” with pet pics or stories about them, I know where I would be as a priority.”
  • “What are these guys thinking? They have a profile picture of themselves shirtless on their boat at least 40 pounds overweight or standing by a ‘crisis” car and then list all the physical activities they do each week. I guess they think I will consider them active and energetic for their age. If they hiked and did everything they say they do, I think they would be planted.”
  • “She was really proud that all her clothes were previously owned and made a big deal about it. On the third and final date, she wore a “vintage” dress so old that the fabric split at a company function. The next day was brutal at work.”
  • “I like really smart men and was on a date with a guy with a science related doctorate who had been widowed 3 years before. I mentioned that it must have been a difficult time and asked what caused her death. He responded that her decline lasted a few years but the doctors were unable to diagnose what was wrong. I then asked what they found in the autopsy and he told me that there wasn’t one….”